As I've been feeling like such crap and I came across this, thought I would share.
http://www.alpineguild.com/COPING%20WITH%20CHRONIC%20ILLNESS.html
I have to say that the biggest thing that does annoy me is when people - and one person in particular that hasn't a clue what life is like in this body - have the nerve to tell me to stop complaining and don't talk about what is wrong with me. I really don't complain that much, and when I'm not having an acute crisis (unf this seems less often) I try to go on with as little nerve as possible.
As Martin Gore wrote: But before you come to any conclusions
"Try walking in my shoes
You'll stumble in my footsteps
Keep the same appointments I kept
If you try walking in my shoes"
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