I've been busy researching dry needling in NYC and writing letters to any organisation that might have a clue as to what direction to point me, since none of my doctors are familiar with it. I just sent this email to the International Myopain Society:
"Hi. I was recently in Holland visiting a friend and she took me to her physio as I was in a lot of pain. Recently I had an MRI that showed disc bulging, herniated discs and stenosis in my cervical spine. I was sent to a neurologist who sent me for the MRI because I had constant pins and needles shooting down my right arm.
I also have EDS - hypermobility, fibromyalgia, TMJ, mild scoliosis and more things I probably can't remember at this moment. I have also had 4 reconstructive hand surgeries, and hip surgery to deal with a torn labrum, psoas release and FAI.
Anyway, I went to see this brilliant physio, Remco, in Den Haag and he did some traction on my neck, adjusted C2 for the TMJ and also adjusted my lower back and did dry needling in my trapezius muscle. It was the first time since the constant pins and needles started that I had relief. I didn't have them for 4 days, and it is still much less than it was.
The thing is, I really need to find someone who can work on me here. I have a chiro, but he's not allowed to do much else other than electric stim and massage and stretching. That helps, but only mildly. I was hoping that you would be able to recommend someone in Manhattan that works with my kind of mess of a body and does dry needling.
If you would I'd so appreciate it.
Thank you very much for your time."
Yes I am desperate! I am hoping someone will respond from one of my cries for help and tell me they know someone in the area. I did find this Dutch-trained physio who would be perfect, but of course he A) is in Bethesda, MD and B) doesn't take insurance. Part of me wants to go down to see him anyway, and he lives close to my aunt and uncle, so...I may just have to. I think I will send him an email as well. His name is Jan Dommerholt and he sounds brilliant.
I go for the EMG test on Monday, my mother is coming with me. Yes, I'm a baby, but I don't fancy someone sticking needles into me and then electrocuting me. We shall see what the darling neurologist has to say about my reports then as well. I have no faith in her at this point, but will bring my research and show her, after she says her opinion.
At present, the neck and back hurt, plus the usual "it's high humidity and low pressure" fibro crap, so going to go to the PT pool after work and hopefully it will be quiet and empty and I can just relax in there for a while.
Showing posts with label fai. Show all posts
Showing posts with label fai. Show all posts
13 November, 2008
30 July, 2007
Background
OK, so I guess I should give some background as to how I got here though that seems to be the big question. How did I get here? I never had an accident or injury to my hip. I do not do heavy duty sports either. So how is it my hip decided to fall apart on me?
Well, my brief medical history is as follow:
age 14 - diagnosed with bilateral chondromalacia in my knees
age 18 - right wrist started to hurt, A LOT! went to 7 dr's in 3 years, most of whom had no clue and one who even told me to call him instead of my mother when it hurt, b/c he was convinced it was in my head.
age 20 - met the hand surgeon of my dreams. (yes this was more important than any other average man!) his team diagnosed me straight away and i was off to have surgery in two weeks time. surgery was relatively successful, until...
age 23 - my right hand/wrist developed chondromalacia so i had to have surgery no. 2 to fix that. then at
age 25 - my left wrist was so jealous that it decided to want surgery too, actually this was surgery no. 3
age 30 - my right hand/ thumb and other bits decided to become a crazy mess of instability so i needed surgery no. 4
Now, in between all of these joyous surgeries, I was diagnosed with fibromyaglia syndrome whilst living in London when i was 22. I love, LOVE, L O V E London, but the weather over there puts me through the ringer. turns out low pressure and high humidity are one of my FMS triggers. I was in PT over there and when I came back to NY. My hand surgeon would not operate until I was stable with that and doing better. He sent me to a rheumatologist, who turned out to be not the brightest or most enlightened or even open to anything other than drugs.
OK, so moving along, my hips have been annoying me for ages, but not to the point where I couldn't really walk or exercise or bike ride. The would hurt, I would shift around, and relatively soon they would be quiet.
That was until last summer...
Ah, last summer. The right hip especially started to pop and click and do all sorts of wonky things on a much more regular basis. I was used to the occasional hip sublexation/dislocation that had been happening for a while, but this pain became all too frequent. It was hurting mostly on my outer hip, which I would later learn was trochanter bursitis.
I had a trip booked to London for a week in October. I decided I would wait to make an appt. to see a dr for the hip after the trip. I wanted to enjoy myself and not worry about appointments or diagnosis or anything of the sort. After all of the medical issues I've had, you start to put of the inevitable.
Big oops by me. I arrived on a Saturday am and left a week later on Sunday. During this time I walked a lot! I usually walk a lot, but in London somehow it always seems to double, especially now that the tubes are horrid. One day I went riding in Hyde Park, something I'd been longing to do. That made all the muscles in my legs ache for a couple of days so I was actually walking funny. I guess one shouldn't do an hours ride when one hasn't been on a horse for a bit! Still my hip wasn't doing hurting too much (I did keep lidoderm patches on it so that was probably masking the pain).
Saturday my friend and I went to do a walking tour in lovely Hampstead. Now, if you've not been, Hampstead is a very, very hilly village. So here we are on the walking tour, going from one lovely old place to another, and on one incline, POP! There goes the right hip. I seriously don't know how I was still standing from the pain. My friend was quite happy to turn back, but I am a bit stubborn (to put it mildly) and refused to let my last night in London be ruined by my crap body, so on we went. All I can say is thanks be to G-d for all the pubs in Hampstead that we stopped at on our tour! Afterwards, I hobbled onto the tube, then to the rail to go out to my friends house where I was staying. I was just hanging in there, and sitting on the train helped a bit, but then I had about a mile walk to his house. That was the longest walk of my life. To this day I do not know how I made it. I was able to take about 3 steps at a time. Stop, whimper, talk myself into moving again, and then another 3 steps. Longest mile of my life! I was a wreck when I got back and literally had to pull myself up the stairs to bed. At this point I'm thinking - yeah, really should have made that dr appointment already! Daft me.
Back in NY I ring some dr's that my main dr recommended. I had to go to the darling rheumatologist that I had written off a few years ago (long story) b/c she was the only one I could seem to get an appt with in the near future. My logic was at least I would be able to have the xrays and mri's started and then hopefully I would know what type of dr I needed to locate. The x-rays were fine, perfectly normal, the MRI not so much. After finally getting the radiologist's report she said I had an FAI, labral tear, bursitis, and some other random things. (btw, my right shoulder had been bad too so she did an xray of that which was fine, but not an mri, something about insurance not doing two mri's at a time). The rheumatologist told me to go see an orthopedist. I asked her for more details, as all of these words were like a foreign language to me, but trying to get an explanation out of her was like trying to find water in the Sahara desert during a drought. The only good thing she did was send me in Dr. Kelly's direction.
Well, my brief medical history is as follow:
age 14 - diagnosed with bilateral chondromalacia in my knees
age 18 - right wrist started to hurt, A LOT! went to 7 dr's in 3 years, most of whom had no clue and one who even told me to call him instead of my mother when it hurt, b/c he was convinced it was in my head.
age 20 - met the hand surgeon of my dreams. (yes this was more important than any other average man!) his team diagnosed me straight away and i was off to have surgery in two weeks time. surgery was relatively successful, until...
age 23 - my right hand/wrist developed chondromalacia so i had to have surgery no. 2 to fix that. then at
age 25 - my left wrist was so jealous that it decided to want surgery too, actually this was surgery no. 3
age 30 - my right hand/ thumb and other bits decided to become a crazy mess of instability so i needed surgery no. 4
Now, in between all of these joyous surgeries, I was diagnosed with fibromyaglia syndrome whilst living in London when i was 22. I love, LOVE, L O V E London, but the weather over there puts me through the ringer. turns out low pressure and high humidity are one of my FMS triggers. I was in PT over there and when I came back to NY. My hand surgeon would not operate until I was stable with that and doing better. He sent me to a rheumatologist, who turned out to be not the brightest or most enlightened or even open to anything other than drugs.
OK, so moving along, my hips have been annoying me for ages, but not to the point where I couldn't really walk or exercise or bike ride. The would hurt, I would shift around, and relatively soon they would be quiet.
That was until last summer...
Ah, last summer. The right hip especially started to pop and click and do all sorts of wonky things on a much more regular basis. I was used to the occasional hip sublexation/dislocation that had been happening for a while, but this pain became all too frequent. It was hurting mostly on my outer hip, which I would later learn was trochanter bursitis.
I had a trip booked to London for a week in October. I decided I would wait to make an appt. to see a dr for the hip after the trip. I wanted to enjoy myself and not worry about appointments or diagnosis or anything of the sort. After all of the medical issues I've had, you start to put of the inevitable.
Big oops by me. I arrived on a Saturday am and left a week later on Sunday. During this time I walked a lot! I usually walk a lot, but in London somehow it always seems to double, especially now that the tubes are horrid. One day I went riding in Hyde Park, something I'd been longing to do. That made all the muscles in my legs ache for a couple of days so I was actually walking funny. I guess one shouldn't do an hours ride when one hasn't been on a horse for a bit! Still my hip wasn't doing hurting too much (I did keep lidoderm patches on it so that was probably masking the pain).
Saturday my friend and I went to do a walking tour in lovely Hampstead. Now, if you've not been, Hampstead is a very, very hilly village. So here we are on the walking tour, going from one lovely old place to another, and on one incline, POP! There goes the right hip. I seriously don't know how I was still standing from the pain. My friend was quite happy to turn back, but I am a bit stubborn (to put it mildly) and refused to let my last night in London be ruined by my crap body, so on we went. All I can say is thanks be to G-d for all the pubs in Hampstead that we stopped at on our tour! Afterwards, I hobbled onto the tube, then to the rail to go out to my friends house where I was staying. I was just hanging in there, and sitting on the train helped a bit, but then I had about a mile walk to his house. That was the longest walk of my life. To this day I do not know how I made it. I was able to take about 3 steps at a time. Stop, whimper, talk myself into moving again, and then another 3 steps. Longest mile of my life! I was a wreck when I got back and literally had to pull myself up the stairs to bed. At this point I'm thinking - yeah, really should have made that dr appointment already! Daft me.
Back in NY I ring some dr's that my main dr recommended. I had to go to the darling rheumatologist that I had written off a few years ago (long story) b/c she was the only one I could seem to get an appt with in the near future. My logic was at least I would be able to have the xrays and mri's started and then hopefully I would know what type of dr I needed to locate. The x-rays were fine, perfectly normal, the MRI not so much. After finally getting the radiologist's report she said I had an FAI, labral tear, bursitis, and some other random things. (btw, my right shoulder had been bad too so she did an xray of that which was fine, but not an mri, something about insurance not doing two mri's at a time). The rheumatologist told me to go see an orthopedist. I asked her for more details, as all of these words were like a foreign language to me, but trying to get an explanation out of her was like trying to find water in the Sahara desert during a drought. The only good thing she did was send me in Dr. Kelly's direction.
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