I've been busy researching dry needling in NYC and writing letters to any organisation that might have a clue as to what direction to point me, since none of my doctors are familiar with it. I just sent this email to the International Myopain Society:
"Hi. I was recently in Holland visiting a friend and she took me to her physio as I was in a lot of pain. Recently I had an MRI that showed disc bulging, herniated discs and stenosis in my cervical spine. I was sent to a neurologist who sent me for the MRI because I had constant pins and needles shooting down my right arm.
I also have EDS - hypermobility, fibromyalgia, TMJ, mild scoliosis and more things I probably can't remember at this moment. I have also had 4 reconstructive hand surgeries, and hip surgery to deal with a torn labrum, psoas release and FAI.
Anyway, I went to see this brilliant physio, Remco, in Den Haag and he did some traction on my neck, adjusted C2 for the TMJ and also adjusted my lower back and did dry needling in my trapezius muscle. It was the first time since the constant pins and needles started that I had relief. I didn't have them for 4 days, and it is still much less than it was.
The thing is, I really need to find someone who can work on me here. I have a chiro, but he's not allowed to do much else other than electric stim and massage and stretching. That helps, but only mildly. I was hoping that you would be able to recommend someone in Manhattan that works with my kind of mess of a body and does dry needling.
If you would I'd so appreciate it.
Thank you very much for your time."
Yes I am desperate! I am hoping someone will respond from one of my cries for help and tell me they know someone in the area. I did find this Dutch-trained physio who would be perfect, but of course he A) is in Bethesda, MD and B) doesn't take insurance. Part of me wants to go down to see him anyway, and he lives close to my aunt and uncle, so...I may just have to. I think I will send him an email as well. His name is Jan Dommerholt and he sounds brilliant.
I go for the EMG test on Monday, my mother is coming with me. Yes, I'm a baby, but I don't fancy someone sticking needles into me and then electrocuting me. We shall see what the darling neurologist has to say about my reports then as well. I have no faith in her at this point, but will bring my research and show her, after she says her opinion.
At present, the neck and back hurt, plus the usual "it's high humidity and low pressure" fibro crap, so going to go to the PT pool after work and hopefully it will be quiet and empty and I can just relax in there for a while.
13 November, 2008
06 November, 2008
post Holland
The flight to Holland was pretty uncomfortable. I used my neck pillow to keep my head up so I wouldn't lean it in any funky position if I fell asleep. It was quite a bumpy flight over there as well. Thank goodness I had the wheelchair pick me up when we landed. There was no way after that long flight I would have been able to walk to miles to the bus transfer for the other terminal. I'm not exaggerating, if you've never been to Heathrow - it is HUGE and it can take you ages to get from one part to another, and that's just in one terminal. They have 5 now, so there's a whole system of transferring and buses and walking down endless corridors.
Terminal 5 is the newest though and quite nice actually.
When I arrived at AMS thankfully my friend picked me up - saved me a lot of pain. The next few days I was a bit of a pretzel and T suggested I see her physio. Thankfully he was able to squeeze me in, and I went on Tuesday afternoon. His name is Remco and I am madly in love with him. He made me feel better than any other person has since I can remember. No miraculous healing or cure, but after what he did, I didn't have pins and needles down my arm for 4 days, and now it's only just starting to get constant again. After having a lengthy discussion with me about my various bodily messes and asking me lots of v. good questions, he examined me. He made some v. interesting insights, like EDS and the neck disc issues are closely related, my C2 is super tight because it's over-compensating for my TMJ on my right side (said that looseness in tmj on right side affects tightness around c2/c3), which is beyond loose and constantly clicky. He asked if my neck cracks when I wake up in the morning, which was funny because it's usually the first thing I have to do before I can get moving. He also said to stay away from surgery and do pt/chiro and keep swimming.
This is what he did:
*adjusted c2/c3
*used manual traction on neck
*adjusted middle back
*three dry acupuncture treatments in right shoulder muscle -said needles would take 2-3 days to really have an affect
He didn't want to do too much work as everything was so irritated already. He also said he wished I lived over there - and I said of course, you want me for your guinea pig - to which he laughed and admitted it. He said that my case was so interesting and I wish the doctors over here looked at it like that. He seemed to really want to help, not fob me off on someone else, which seems mostly the case over here, with a few exceptions.
Since I've been back I spoke to Dr. Rosen and she thinks I should look into the dry needling, although she cautioned nothing is a cure-all, which I know, but heck - I'll take any relief I can get, especially if it's not drug related. I also spoke to my rheumatologist, Dr. Meng and whilst she does basic acupuncture, she's not familiar with dry needling, but also agreed that it was something interesting to look into.
I am going to my chiro shortly and will tell him what the physio said and see what he thinks as well. I did come across a name of a doctor at NY Presbyterian that does dry needling in one of the articles I printed out, so may ring him later and see what his office says.
I definitely am back to bad pain in my neck now and the pins and needles are not 24/7 yet but they are getting back to that level. My TMJ is a mess, and I get my night guard next weekend. I really hope that helps.
Terminal 5 is the newest though and quite nice actually.
When I arrived at AMS thankfully my friend picked me up - saved me a lot of pain. The next few days I was a bit of a pretzel and T suggested I see her physio. Thankfully he was able to squeeze me in, and I went on Tuesday afternoon. His name is Remco and I am madly in love with him. He made me feel better than any other person has since I can remember. No miraculous healing or cure, but after what he did, I didn't have pins and needles down my arm for 4 days, and now it's only just starting to get constant again. After having a lengthy discussion with me about my various bodily messes and asking me lots of v. good questions, he examined me. He made some v. interesting insights, like EDS and the neck disc issues are closely related, my C2 is super tight because it's over-compensating for my TMJ on my right side (said that looseness in tmj on right side affects tightness around c2/c3), which is beyond loose and constantly clicky. He asked if my neck cracks when I wake up in the morning, which was funny because it's usually the first thing I have to do before I can get moving. He also said to stay away from surgery and do pt/chiro and keep swimming.
This is what he did:
*adjusted c2/c3
*used manual traction on neck
*adjusted middle back
*three dry acupuncture treatments in right shoulder muscle -said needles would take 2-3 days to really have an affect
He didn't want to do too much work as everything was so irritated already. He also said he wished I lived over there - and I said of course, you want me for your guinea pig - to which he laughed and admitted it. He said that my case was so interesting and I wish the doctors over here looked at it like that. He seemed to really want to help, not fob me off on someone else, which seems mostly the case over here, with a few exceptions.
Since I've been back I spoke to Dr. Rosen and she thinks I should look into the dry needling, although she cautioned nothing is a cure-all, which I know, but heck - I'll take any relief I can get, especially if it's not drug related. I also spoke to my rheumatologist, Dr. Meng and whilst she does basic acupuncture, she's not familiar with dry needling, but also agreed that it was something interesting to look into.
I am going to my chiro shortly and will tell him what the physio said and see what he thinks as well. I did come across a name of a doctor at NY Presbyterian that does dry needling in one of the articles I printed out, so may ring him later and see what his office says.
I definitely am back to bad pain in my neck now and the pins and needles are not 24/7 yet but they are getting back to that level. My TMJ is a mess, and I get my night guard next weekend. I really hope that helps.
20 October, 2008
Piece by piece
I am falling apart. I'm so tired of this all.
I had the MRI for my neck on the 11 October. I am not good in small spaces so the neurologist gave me some Valium. Thankfully one of my friends came with me because me on Valium is insanity itself. It helped a lot and I kept my eyes closed the whole time, which was about half an hour. After I went home and passed out for a few hours on my couch. I was so loopy!
By Friday I still had not heard from Dr. Fatimi, the neurologist. Since the MRI results were only to take a couple of days, I figured I better ring her. I first called, left a message and was told she would return my call shortly. Three and a half hours later, still no call. I rang back, got someone in her office that hadn't a clue about anything, and told me the doctor had already left. Finally they found someone who sort of knew something, but not really. First she told me that the doctor had asked her to call me - Um, well, why didn't you then? - and my MRI was normal. I was happy if not surprised at this, as the pain is just getting worse. I then asked what was the next step, as Dr. Fatimi had thought I would need an EMG test. She said to make an appointment, so the first that was available was for 3 November, the day after I return from Holland. I hang up the phone, and within a minute or two, my mobile rings. It was the woman from Dr. Fatimi's office calling to say that she is very sorry but she gave me the wrong results and the appointment is to discuss my results. "So my MRI was not normal?" I asked her, and she was like, nope. That's it, nothing. I was meant to sit around for two weeks wondering what is going on. Thankfully a friend of mine said that I could go to the radiology place and get a report, which I did on Saturday.
Here is what the report said:
MRI of the Cervical Spine without Contrast
Findings: Magnetic resonance imaging was performed with sagittal T1-weighted images, sagittal fast spin-echo T2 and proton density images and gradient echo and fast spin-echo T2 axial images on a 1.5 Tesla MR unit.
Mild disc bulging and spondylosis is present at C4-C5, C5-C6, C6-C7. At C4-C5, there is a small superimposed right-sided disc herniation resulting in mild compression of the spinal cord. Minimal flattening of the spinal cord is present at C5-C6. At C6-C7, there is a small to medium-sized superimposed central disc herniation with mild cord flattening.
No other significant bulging or herniated discs are identified. The size and signal of the spinal cord are normal. Uncovertebral and face joint hypertrophy results in neural foraminal stenosis which is mild bilateral at C3-C4, mild to moderate right and mild left at C4-C5, moderately severe right and mild to moderate left at C5/6 and mild right at C7-T1.
The craniovertebral junction is unremarkable. The osseous structures are intact. No masses are identified. Mild disc space narrowing is present at C4-C5 and C5-C6 and there is diffusely decreased disc signal on T2-weighted images due to disc degeneration.
Impression: Mild disc bulging and spondylosis from C4-C5 through C6-C8 with small to medium-sized superimposed central disc herniation at C6-C7 and small right-sided disc herniation at C4-C5, resulting in mild spinal cord compression. Mild to moderate multilevel foraminal stenosis as above.
Sounds lovely, doesn't it? I tried to look up some of those things on my phone but it was too much to try. I was able to speak to a friend that is a chiropractor and he helped explain all the craziness going on. The long and the short of it is there are three options: surgery, which does not sound lovely at all; PT, which would strengthen my neck but not help the compression; and chiro, there is a technique called Cox (have to go look it up) but the catch is it a)is management, not cure and b)very few dr's do it, and those that do know more about the lower back than using for the upper, and c)the place my friend knows in the city does not take ANY insurance, and it would be $150 PER VISIT!!! and I would need to go a few times a week. I really need to start playing the lottery!
With regards to this Dr. Fatimi - I am definitely not liking her at all. First of all, I didn't like the way she fobbed me off and told me it was carpal tunnel, even though I told her it wasn't that type of pain. I've just faxed over the report to Dr. Rosen and asked her to ring me when she has a chance to discuss what to do.
I also made an appointment for tomorrow morning with my old chiro as my whole right side of my back is in spasms and I need to get some relief before my long trip to Holland on Friday.
Never a dull moment.
In other news...My UTI results came back and Dr. Rosen said that the antibiotic I was taking was not one the lab listed for that type of infection, so I had to go back, take another test - which was not completely normal - then they sent it to the lab, and go on a different antibiotic. Of course we didn't get the results from the lab until AFTER I was done taking the new antibiotics, which, obviously, I did not need.
Where can I get a new body please???
I had the MRI for my neck on the 11 October. I am not good in small spaces so the neurologist gave me some Valium. Thankfully one of my friends came with me because me on Valium is insanity itself. It helped a lot and I kept my eyes closed the whole time, which was about half an hour. After I went home and passed out for a few hours on my couch. I was so loopy!
By Friday I still had not heard from Dr. Fatimi, the neurologist. Since the MRI results were only to take a couple of days, I figured I better ring her. I first called, left a message and was told she would return my call shortly. Three and a half hours later, still no call. I rang back, got someone in her office that hadn't a clue about anything, and told me the doctor had already left. Finally they found someone who sort of knew something, but not really. First she told me that the doctor had asked her to call me - Um, well, why didn't you then? - and my MRI was normal. I was happy if not surprised at this, as the pain is just getting worse. I then asked what was the next step, as Dr. Fatimi had thought I would need an EMG test. She said to make an appointment, so the first that was available was for 3 November, the day after I return from Holland. I hang up the phone, and within a minute or two, my mobile rings. It was the woman from Dr. Fatimi's office calling to say that she is very sorry but she gave me the wrong results and the appointment is to discuss my results. "So my MRI was not normal?" I asked her, and she was like, nope. That's it, nothing. I was meant to sit around for two weeks wondering what is going on. Thankfully a friend of mine said that I could go to the radiology place and get a report, which I did on Saturday.
Here is what the report said:
MRI of the Cervical Spine without Contrast
Findings: Magnetic resonance imaging was performed with sagittal T1-weighted images, sagittal fast spin-echo T2 and proton density images and gradient echo and fast spin-echo T2 axial images on a 1.5 Tesla MR unit.
Mild disc bulging and spondylosis is present at C4-C5, C5-C6, C6-C7. At C4-C5, there is a small superimposed right-sided disc herniation resulting in mild compression of the spinal cord. Minimal flattening of the spinal cord is present at C5-C6. At C6-C7, there is a small to medium-sized superimposed central disc herniation with mild cord flattening.
No other significant bulging or herniated discs are identified. The size and signal of the spinal cord are normal. Uncovertebral and face joint hypertrophy results in neural foraminal stenosis which is mild bilateral at C3-C4, mild to moderate right and mild left at C4-C5, moderately severe right and mild to moderate left at C5/6 and mild right at C7-T1.
The craniovertebral junction is unremarkable. The osseous structures are intact. No masses are identified. Mild disc space narrowing is present at C4-C5 and C5-C6 and there is diffusely decreased disc signal on T2-weighted images due to disc degeneration.
Impression: Mild disc bulging and spondylosis from C4-C5 through C6-C8 with small to medium-sized superimposed central disc herniation at C6-C7 and small right-sided disc herniation at C4-C5, resulting in mild spinal cord compression. Mild to moderate multilevel foraminal stenosis as above.
Sounds lovely, doesn't it? I tried to look up some of those things on my phone but it was too much to try. I was able to speak to a friend that is a chiropractor and he helped explain all the craziness going on. The long and the short of it is there are three options: surgery, which does not sound lovely at all; PT, which would strengthen my neck but not help the compression; and chiro, there is a technique called Cox (have to go look it up) but the catch is it a)is management, not cure and b)very few dr's do it, and those that do know more about the lower back than using for the upper, and c)the place my friend knows in the city does not take ANY insurance, and it would be $150 PER VISIT!!! and I would need to go a few times a week. I really need to start playing the lottery!
With regards to this Dr. Fatimi - I am definitely not liking her at all. First of all, I didn't like the way she fobbed me off and told me it was carpal tunnel, even though I told her it wasn't that type of pain. I've just faxed over the report to Dr. Rosen and asked her to ring me when she has a chance to discuss what to do.
I also made an appointment for tomorrow morning with my old chiro as my whole right side of my back is in spasms and I need to get some relief before my long trip to Holland on Friday.
Never a dull moment.
In other news...My UTI results came back and Dr. Rosen said that the antibiotic I was taking was not one the lab listed for that type of infection, so I had to go back, take another test - which was not completely normal - then they sent it to the lab, and go on a different antibiotic. Of course we didn't get the results from the lab until AFTER I was done taking the new antibiotics, which, obviously, I did not need.
Where can I get a new body please???
07 October, 2008
M.I.A.
Yes I've been MIA for quite some time now. From mid-August till the beginning of September I was in my own world. I just didn't have the energy to deal with everything going on. I will give a quick recap for the past few weeks:
18-24 August: went to pool 3x that week, and cut my hair off. I needed a change in so many ways, and that one was the easiest! Then again, I didn't really have much of a say. Avi, my hairdresser, decided I was long overdue, and well, there is no arguing with him. That weekend I was out pre-celebrating my birthday, which I overdid - way too much. You don't realise how that sangria hits you until it's too too late. Had an appointment with Dr. A, to check my wound - he said it was ok but the day before it didn't look so ok.
25-31 August: was good again and did pool 3x. Continued to celebrate within reason for the most part, until the weekend. Oops. I did do some samba dancing though which I thought was quite impressive for my hip. The hip let me enjoy myself for a bit and then decided it was time to sit back down. But still, no long term suffering which was a v. good thing.
1-7 September: pool 2x that week. Yet another appointment with Dr. A to check the wound that would not heal. He says it was doing okay, even though I was in more pain than I had been in for a few weeks (not counting the cauterization).
8-14 September: Big accomplishment - I biked from my flat to BB&B, which is a little over 2 miles. I was very proud of the hip, it held up quite nicely, even with a few inclines that were on First Ave. Pool again 3x.
15-21 September: Pool only 2x this week. I had to go to the dentist to have a crown made for my last root canal, the one that went horribly wrong. Yes, it was almost a year ago, but after all that agony I was quite happy to not have anyone muck up my mouth again. It was agony and then I had to stay for a cleaning as well. Thankfully I took half a pain pill beforehand so that helped a little bit. My TMJ was a mess for the week after, and still is a bit now come to think of it.
22-28 September: very bad - didn't go to the pool all week. To be fair, Thursday night I had a pretty bad onset of my FMS and by the weekend was almost completely bed/couch bound. Between my exhaustion and stress and the weather I felt absolutely dreadful. I did somehow manage to pull it together enough to make challah on Sunday though. Not quite sure how I pulled that off, but I was determined.
29-30 September - 5 October: pool 2x this week. It was difficult with all the running around back and forth to the island for the holidays, and then again on the weekend for the dentist. I had my crown fitted and also decided to get a night guard as my teeth seem to be catching the brunt of my nighttime grinding. Hopefully this one will be better than the one I had ages ago and it will do some good. It sure costs enough! But to add to the excitement of the holiday, during shul on Tuesday I started to feel icky. I thought my tummy had gone off so went to the loo, but it wasn't that. To spare you the details, the short of it is I had a surprise UTI. I can't remember the last time I had one, so was pretty flipped out when I started to see blood. Thankfully my sister in law knew what to do and sorted me out until I was able to see the doctor the next day. Yes I had a bad UTI and had to go on a major dose of antibiotics. Oh joy!
As for this week so far, it's been pretty icky. Yesterday I had a visit with a neurologist, Dr. Fatimi. When I had my physical a few weeks back, my doctor recommended me to one so we could check out all this tingling/pins and needles down my right arm/hand and the twitching in my left finger. She decided I needed an MRI for my neck and an EMG test. For those not familiar, please see the video below. I'm still not convinced after watching it that it isn't more painful than they are portraying, but that's because I do not trust anyone in the medical profession anymore after all of the pain they've inflicted on me. But hey, that's just me.
EMG NCS test
Currently the doctor thinks I might have carpal tunnel. I've thought I've had that for a while, but the pain I've been having daily for the last few months feels different than that, so we shall see. (As a side note, my right hand by the thumb area has been killing me the last couple of weeks. The injection that Dr. Melone gave me definitely wore off. I know he said that I would need surgery if the injection didn't last, and not sure if I should do that now or wait. I am going to see what the EMG study shows first about carpal tunnel and then make an appointment to see him. He said it would be an easy surgery compared to what I've had in the past, but I need more detailed information on that.) The doctor was pretty young and I am not sure I am that keen about her, but I will give it a little time. Then again, whenever I meet a doctor they usually think I'm barmy because of the multitude of issues I have. It's hard to find a good doctor that has a clue. Anyway, she said that if I do have carpal tunnel she would give me a splint to wear at night. I said I've already got that. She also mentioned Lyrica and when I told her I'd only heard bad things from people who have taken it, she said she had seen good results. Since I don't really trust doctors and I definitely don't trust pharmaceutical companies, and I do believe real people stories, I am not going to go that route. It's bad enough I'm taking Mobic now - though I really need to remember to take it every day, I think it's a subconscious thing that I forget it. I told her I would prefer non-medicated ways to treat whatever the issue is, and she did say PT could be something as well as massage therapy. Now that is something I can get on board with!
Of course when I returned to the office there were messages from my regular doctor. The results of the pee test came back and the lab claims that the bacteria in me would not be destroyed by the antibiotics I am on. So, since neither my doctor nor I wanted to try more drugs just for the sake of it, I have to go back on Friday for another pee test to see if the bacteria have been killed or if I really do need to start another course of antibiotics.
I'm starting to wonder how I have not ended up in a loony bin at this point.
I think that is all, but my memory has been crap. Yesterday the neurologist asked me if I had a doctor treating my FMS and I was like - on no, didn't like the last one and haven't got a new one. Daft git I am - of course I have a new one, the one that put me on Mobic. It was pretty embarrassing to have to tell her that I forgot.
Oh - never heard again from Dr. Kelly's office about rescheduling, and I'm in no rush to go back there. Still v. mad that they did not help me one bit in fighting the insurance about cancelling my PT. Also had an appointment w/ Dr. A scheduled for last Friday, but his office cancelled it, and I have not been bothered about ringing them back to reschedule either. I am so bored with all of this medical rubbish!
18-24 August: went to pool 3x that week, and cut my hair off. I needed a change in so many ways, and that one was the easiest! Then again, I didn't really have much of a say. Avi, my hairdresser, decided I was long overdue, and well, there is no arguing with him. That weekend I was out pre-celebrating my birthday, which I overdid - way too much. You don't realise how that sangria hits you until it's too too late. Had an appointment with Dr. A, to check my wound - he said it was ok but the day before it didn't look so ok.
25-31 August: was good again and did pool 3x. Continued to celebrate within reason for the most part, until the weekend. Oops. I did do some samba dancing though which I thought was quite impressive for my hip. The hip let me enjoy myself for a bit and then decided it was time to sit back down. But still, no long term suffering which was a v. good thing.
1-7 September: pool 2x that week. Yet another appointment with Dr. A to check the wound that would not heal. He says it was doing okay, even though I was in more pain than I had been in for a few weeks (not counting the cauterization).
8-14 September: Big accomplishment - I biked from my flat to BB&B, which is a little over 2 miles. I was very proud of the hip, it held up quite nicely, even with a few inclines that were on First Ave. Pool again 3x.
15-21 September: Pool only 2x this week. I had to go to the dentist to have a crown made for my last root canal, the one that went horribly wrong. Yes, it was almost a year ago, but after all that agony I was quite happy to not have anyone muck up my mouth again. It was agony and then I had to stay for a cleaning as well. Thankfully I took half a pain pill beforehand so that helped a little bit. My TMJ was a mess for the week after, and still is a bit now come to think of it.
22-28 September: very bad - didn't go to the pool all week. To be fair, Thursday night I had a pretty bad onset of my FMS and by the weekend was almost completely bed/couch bound. Between my exhaustion and stress and the weather I felt absolutely dreadful. I did somehow manage to pull it together enough to make challah on Sunday though. Not quite sure how I pulled that off, but I was determined.
29-30 September - 5 October: pool 2x this week. It was difficult with all the running around back and forth to the island for the holidays, and then again on the weekend for the dentist. I had my crown fitted and also decided to get a night guard as my teeth seem to be catching the brunt of my nighttime grinding. Hopefully this one will be better than the one I had ages ago and it will do some good. It sure costs enough! But to add to the excitement of the holiday, during shul on Tuesday I started to feel icky. I thought my tummy had gone off so went to the loo, but it wasn't that. To spare you the details, the short of it is I had a surprise UTI. I can't remember the last time I had one, so was pretty flipped out when I started to see blood. Thankfully my sister in law knew what to do and sorted me out until I was able to see the doctor the next day. Yes I had a bad UTI and had to go on a major dose of antibiotics. Oh joy!
As for this week so far, it's been pretty icky. Yesterday I had a visit with a neurologist, Dr. Fatimi. When I had my physical a few weeks back, my doctor recommended me to one so we could check out all this tingling/pins and needles down my right arm/hand and the twitching in my left finger. She decided I needed an MRI for my neck and an EMG test. For those not familiar, please see the video below. I'm still not convinced after watching it that it isn't more painful than they are portraying, but that's because I do not trust anyone in the medical profession anymore after all of the pain they've inflicted on me. But hey, that's just me.
EMG NCS test
Currently the doctor thinks I might have carpal tunnel. I've thought I've had that for a while, but the pain I've been having daily for the last few months feels different than that, so we shall see. (As a side note, my right hand by the thumb area has been killing me the last couple of weeks. The injection that Dr. Melone gave me definitely wore off. I know he said that I would need surgery if the injection didn't last, and not sure if I should do that now or wait. I am going to see what the EMG study shows first about carpal tunnel and then make an appointment to see him. He said it would be an easy surgery compared to what I've had in the past, but I need more detailed information on that.) The doctor was pretty young and I am not sure I am that keen about her, but I will give it a little time. Then again, whenever I meet a doctor they usually think I'm barmy because of the multitude of issues I have. It's hard to find a good doctor that has a clue. Anyway, she said that if I do have carpal tunnel she would give me a splint to wear at night. I said I've already got that. She also mentioned Lyrica and when I told her I'd only heard bad things from people who have taken it, she said she had seen good results. Since I don't really trust doctors and I definitely don't trust pharmaceutical companies, and I do believe real people stories, I am not going to go that route. It's bad enough I'm taking Mobic now - though I really need to remember to take it every day, I think it's a subconscious thing that I forget it. I told her I would prefer non-medicated ways to treat whatever the issue is, and she did say PT could be something as well as massage therapy. Now that is something I can get on board with!
Of course when I returned to the office there were messages from my regular doctor. The results of the pee test came back and the lab claims that the bacteria in me would not be destroyed by the antibiotics I am on. So, since neither my doctor nor I wanted to try more drugs just for the sake of it, I have to go back on Friday for another pee test to see if the bacteria have been killed or if I really do need to start another course of antibiotics.
I'm starting to wonder how I have not ended up in a loony bin at this point.
I think that is all, but my memory has been crap. Yesterday the neurologist asked me if I had a doctor treating my FMS and I was like - on no, didn't like the last one and haven't got a new one. Daft git I am - of course I have a new one, the one that put me on Mobic. It was pretty embarrassing to have to tell her that I forgot.
Oh - never heard again from Dr. Kelly's office about rescheduling, and I'm in no rush to go back there. Still v. mad that they did not help me one bit in fighting the insurance about cancelling my PT. Also had an appointment w/ Dr. A scheduled for last Friday, but his office cancelled it, and I have not been bothered about ringing them back to reschedule either. I am so bored with all of this medical rubbish!
18 August, 2008
Saturday morning
I woke up and my bum was burning. So I looked. Seemed after the torture of the cauterization the day before - it hadn't even worked!
Just my luck.
I'm not even going to bother to ring the doctor since I'm seeing him on Friday. There is no way I'm letting him cauterize anything again as it was so painful and no success.
I'm pretty much hitting bottom right now.
Just my luck.
I'm not even going to bother to ring the doctor since I'm seeing him on Friday. There is no way I'm letting him cauterize anything again as it was so painful and no success.
I'm pretty much hitting bottom right now.
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