Wishing for normalcy
from diagnosis through surgery for FAI, labral tear, psoas release, as well as fibromyalgia and EDS (ehlers danlos / hypermobility syndrome) - and not lets forget the bad hands/wrists! Additional information regarding dealing with a peri-rectal abscess which then turned into a fistula. Currently I'm trying to sort out my neck and upper back as I have been diagnosed with stenosis, and herniated and bulging discs in my cervical spine.
24 November, 2014
Update
I've not updated this blog in a while, and that's a good thing. Thankfully I have learned to (mostly) pay more attention to what my body is saying. That doesn't mean I'm not in pain, just that I have learned to lessen the flare ups that are under my control. I can't control the weather, but I can sometimes get a better handle on the sleep and stress end of my triggers. I have been going to PT with a Feldenkrais practitioner and have found it extremely helpful as well. I highly recommend checking it out for body work .
My mantra is, well one of them, "one day at a time". And also the spoon theory is great to keep in mind. When I first read it, it was like someone had been in my brain and verbalised what I couldn't. If you're not familiar, this link describes it well:
Wishing you all painless and happy times.
02 August, 2010
Never, ever, ever do I have a dull moment
Ha! Why should I be stuck with only strep throat? It's me - nothing is ever normal! So fever and throat kept getting worse. Went back to dr's on Friday (and had to cancel my trip to VA for the wkend which sucked) and it turned out that in addition to strep, I developed infections on my tonsils. So after blood tests and more of the dr feeling how large my glands had swollen, she switched me to Biaxin. She also mentioned that if I got worse over the weekend I'd have to go to casualty to make sure I didn't have an abscess. Now the problem here is she mentioned the A word. It's illegal to mention the A word near me, b/c somehow my body gets ideas from it.
Well, thankfully my throat improved over the weekend, but why leave things like that? If something is getting better, then something else needs to get worse, right? Well that's my body's inane logic. So of course the bum started to hurt. I tried to ignore it, figured it was b/c I was spending a lot of time on the couch, blah blah blah. It's easy to try to rationalise these things away. Of course it never works.
So today I went back to my dr so she could check out my throat - happy it was improving but definitely not 100% yet. I'm not greedy, I'll take what I can get. Since I was there, and missed a lot of work last week (though to be fair I went in everyday except Tuesday, even burning with fever, because the office was moving and I had to sort it out) I asked her to just take a glance at my bottom and see if I was hallucinating. It's happened occasionally...
No such luck this time, she suggested I head downstairs to my CRS to see if he could take a look at me. It's so nice having most of my dr's in the same building, really saves on commuting times/costs! So I went downstairs where they know me oh so well. The receptionist was like - do you have an appt? I told her the situation and she said to have a seat. I thought I'd just make an appt, but she conferred with some people and then they spoke to Dr. A and what can I say, I've just got that special affect that he wanted to see me then and there. He probably thought I was imagining it again and just get rid of me. Well I shouldn't say that, he's actually quite sensitive to my plight and I believe would really love to suss out why I keep getting these, well, you know the word. So he came in, I told him, he took one look at me and was like, yep you've got an -------. So it didn't develop in my throat, but lucky me still got one on the other end! He wanted to do surgery tmrw morning but I told him I'd missed so much work last week. We agreed to Thursday, and he conferred w/ my dr about drugs in the meantime, so now I'm on Biaxin AND Flagyl. So I can't even drink myself silly about this blasted situation! I'm hoping I hold out until Thursday as I really want to miss the least amount of work possible. Fingers crossed!!!
Oh - and my blasted neck is still killing me! ARGH!!!
Well, thankfully my throat improved over the weekend, but why leave things like that? If something is getting better, then something else needs to get worse, right? Well that's my body's inane logic. So of course the bum started to hurt. I tried to ignore it, figured it was b/c I was spending a lot of time on the couch, blah blah blah. It's easy to try to rationalise these things away. Of course it never works.
So today I went back to my dr so she could check out my throat - happy it was improving but definitely not 100% yet. I'm not greedy, I'll take what I can get. Since I was there, and missed a lot of work last week (though to be fair I went in everyday except Tuesday, even burning with fever, because the office was moving and I had to sort it out) I asked her to just take a glance at my bottom and see if I was hallucinating. It's happened occasionally...
No such luck this time, she suggested I head downstairs to my CRS to see if he could take a look at me. It's so nice having most of my dr's in the same building, really saves on commuting times/costs! So I went downstairs where they know me oh so well. The receptionist was like - do you have an appt? I told her the situation and she said to have a seat. I thought I'd just make an appt, but she conferred with some people and then they spoke to Dr. A and what can I say, I've just got that special affect that he wanted to see me then and there. He probably thought I was imagining it again and just get rid of me. Well I shouldn't say that, he's actually quite sensitive to my plight and I believe would really love to suss out why I keep getting these, well, you know the word. So he came in, I told him, he took one look at me and was like, yep you've got an -------. So it didn't develop in my throat, but lucky me still got one on the other end! He wanted to do surgery tmrw morning but I told him I'd missed so much work last week. We agreed to Thursday, and he conferred w/ my dr about drugs in the meantime, so now I'm on Biaxin AND Flagyl. So I can't even drink myself silly about this blasted situation! I'm hoping I hold out until Thursday as I really want to miss the least amount of work possible. Fingers crossed!!!
Oh - and my blasted neck is still killing me! ARGH!!!
Labels:
abscess,
Dr. Aranoff,
neck pain,
strep throat,
tonsilitis
28 July, 2010
icky sicky me
My body devised a completely brilliant plan to stop the neck/shoulder from hurting so much - I got strep throat! I haven't had it in so long and completely forgot what a joy it is - NOT! Monday I had a sore throat, Tuesday stayed home and fever went up and throat got worse, Wednesday went to dr's and they did a rapid strep test. At least I'm on antibiotics now. Should have gone yesterday but I get sore throats a lot and most of the time they're just from acid reflux or post nasal drip. But today I knew I had something super special since my fever has gone up from 98.9 on Monday, then 100.4 last night and then 101.1 today. For most people this doesn't seem like a high fever, but my normal temp is about 97.8ish - so if I get anything above 98.6 I know I'm sick. And fever knock me out. I am praying these drugs kick in soon and I can hopefully get a night of sleep. This feeling cold and hot at the same time and my head pounding and my throat on fire is just not something I am enjoying. But it does make a change from the neck! That still hurts but I can't tell if it's not as bad b/c it's improving from the injections or I'm in so much pain elsewhere my brain can't register it all.
Labels:
injection,
neck pain,
shoulder pain,
strep throat
22 July, 2010
so not better
Neck pain is just horrid and not improving. This is not fun. I keep going to the gym every other day - sheer torture - but feel slightly better for a slim amount of time after. I walked a lot today at lunch as well hoping to relax the muscles. The needles just really pissed them off and they're not getting happier at all. I'm praying this improves by the 30th at the latest as I'm away that weekend and it will just not be fun feeling like this.
But still, the weather was lovely today and now I'm off to meet a friend for some vino. That should help a bit :)
But still, the weather was lovely today and now I'm off to meet a friend for some vino. That should help a bit :)
20 July, 2010
OMFG!
This pain is incredible. I can't even find words to describe how much pain I am in. I have to get through two more hours of work, sitting here with ice on my neck and praying for the massive pain to subside.
If I ever want to do this again, please someome stop me! I just hope the relief is fast to happen and gets rid of this pain. I am so much worse than I was before the injections. My muscles are so angry it's not funny.
If I ever want to do this again, please someome stop me! I just hope the relief is fast to happen and gets rid of this pain. I am so much worse than I was before the injections. My muscles are so angry it's not funny.
Subscribe to:
Posts (Atom)