I pretty much knew in advance what she was going to say, but with her positive spin on things she really knows how to make you feel better.
So do I have a genetic condition? Dr. Davis, whom I can't recommend highly enough, is very straight forward and direct. This is a quality I highly admire. I truly hate when people, especially doctors, jerk you around.
She said that whilst it can be confirmed or disproved that I have EDS, the likely hood is high, and that the only thing I can do is to moderate my life. Basically meaning no high wire stunts or climbing the Andes. I already realised this was not where my desires should be. The horseback riding is a hard pill to swallow even though I know it is v. v. bad for me. But such is life. She recommended that I don't do too much weight-bearing exercises and that aqua therapy would be the best thing to stick to. I had been hoping to get to the pool a couple weeks back but because of the hip irritation it hasn't happened yet. Hopefully soon.
I will try my best to preserve what I can for as long as I can, and that is all I can do.
Showing posts with label Dr. Davis. Show all posts
Showing posts with label Dr. Davis. Show all posts
23 January, 2008
23 August, 2007
M.I.A.
I've been MIA because this weather is killing me. Regardless of the hip, the rest of me feels like it's been run over by a very large 18-wheeler.
So the update is as follows:
I still have not heard back from Dr. Kelly's office about a Dr to see regarding what the PA had been talking about. I've sent multiple messages, and as I'm sure this does not rate high on their list, it's essential to me. So off I've been doing loads of research. My parents Dr recommended a rheumatologist at NYU, and I was going to see him (even though he doesn't take any insurance and it's $550 for the first visit - what cheek!). However, I came across some other names on some hyper-mobility boards I was reading and researched them. The one that seemed to stick out for me was Jessica Davis. She is a genetics specialist and when I rang the office happily found out she takes insurance! I also spoke to her assistant and told her (briefly) my various issues, and she said that is the kind of patient Dr. Davis sees. I try to not get too excited about these little things, but it was a relief to hear that I was barking up the right tree, or at least heading into the right forest. So my appt is for 6th Sept. I cancelled the appt w/ the $$$ rheumatologist for now. I figure that if this Dr says I should see one I can do that, but if there is no need I saved a nice chunk of change, and time too.
Dr. Davis' office asked me to bring any sort of records I could obtain. I believe I had an EKG and chest films a year or so ago so contacted my GP for those and also had to ring the horrid ex-rheumatologist's office to get the last blood test results she did for me. I can't tell you how much I was dreading that she's answer the phone. Thankfully she didn't and she seems to have a new assistant who seemed very nice and hopefully will send over those results quickly. Fingers crossed.
Now it's just for me to get through this horrid weather. When will it stop???
On a happier note, my friend and I are planning to go to London for New Years. I'm not sure how great an idea that is with my hip and what situation I will be in. I figure I deserve a reward for all that I am going through, so bugger it, why not!
So the update is as follows:
I still have not heard back from Dr. Kelly's office about a Dr to see regarding what the PA had been talking about. I've sent multiple messages, and as I'm sure this does not rate high on their list, it's essential to me. So off I've been doing loads of research. My parents Dr recommended a rheumatologist at NYU, and I was going to see him (even though he doesn't take any insurance and it's $550 for the first visit - what cheek!). However, I came across some other names on some hyper-mobility boards I was reading and researched them. The one that seemed to stick out for me was Jessica Davis. She is a genetics specialist and when I rang the office happily found out she takes insurance! I also spoke to her assistant and told her (briefly) my various issues, and she said that is the kind of patient Dr. Davis sees. I try to not get too excited about these little things, but it was a relief to hear that I was barking up the right tree, or at least heading into the right forest. So my appt is for 6th Sept. I cancelled the appt w/ the $$$ rheumatologist for now. I figure that if this Dr says I should see one I can do that, but if there is no need I saved a nice chunk of change, and time too.
Dr. Davis' office asked me to bring any sort of records I could obtain. I believe I had an EKG and chest films a year or so ago so contacted my GP for those and also had to ring the horrid ex-rheumatologist's office to get the last blood test results she did for me. I can't tell you how much I was dreading that she's answer the phone. Thankfully she didn't and she seems to have a new assistant who seemed very nice and hopefully will send over those results quickly. Fingers crossed.
Now it's just for me to get through this horrid weather. When will it stop???
On a happier note, my friend and I are planning to go to London for New Years. I'm not sure how great an idea that is with my hip and what situation I will be in. I figure I deserve a reward for all that I am going through, so bugger it, why not!
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