Well, it's been a rough weekend to say the least. Here I thought I was doing so well last week that I might have gone too far, too fast. I had been hoping to go to the pool this weekend and try out some exercises that my PT showed me, but alas, my hips had other ideas. I tried icing them but it did not do much. Yesterday my right hip was so bad that I actually used a lidocaine patch on it. I have not done that since before surgery, so you can see why it is so upsetting. I will go over all of this with my PT again, though last week he did say I couldn't damage anything that had been done surgically. Hopefully it is just that I over used it and pushed myself too far.
As for the left, whatever the injection did to help it seems to have stopped doing. I know I should contact Dr. Kelly and tell him, but at the same time I cannot imagine having surgery in the near future for this. My whole body cannot handle that again this soon, and I definitely feel my right hip would not be up to the pressure of supporting me for three months on crutches. So we have yet another catch 22.
To add to it, my lovely hands have been out of control pain-wise for the last week. Anytime they hurt for more than a day or so straight I start to worry.
The weather is not helping either for the moment.
Oh well, as my heroine says,
Tomorrow is another day.
Showing posts with label crutches. Show all posts
Showing posts with label crutches. Show all posts
14 January, 2008
21 December, 2007
YAY!
I made it a whole work week without a crutch in sight. Quite an accomplishment. My left hip has started to really bother me again so I am glad that I've the injection for later today, though I must say I am not looking forward to the procedure itself. I believe I have the same doctor as last time though and he was very good. I so appreciated how he explained the procedure step by step and was constantly telling me everything about it and how it was going.
On a different note, I came across some interesting items on a message board I am on and thought I would post them. I did not write them. I will post each separately.
Also, check out this site: http://www.butyoudontlooksick.com/navigation/BYDLS-TheSpoonTheory.pdf
On a different note, I came across some interesting items on a message board I am on and thought I would post them. I did not write them. I will post each separately.
Also, check out this site: http://www.butyoudontlooksick.com/navigation/BYDLS-TheSpoonTheory.pdf
19 December, 2007
13 Week update
In honour of my thirteenth week of recovery, I decided to be brave and ditch the last crutch. Unlike most people I've had to use one for a much longer time. The idea was to keep down the inflammation in the surgical hip, and it did work. The main issue was it made my left hip very upset and inflamed.
Today is my third "official" day going sans crutch. It's been going pretty well. The main issues I've found are if I walk for a few blocks my hamstring starts to get tight and sore on the upper part, and the tendon under my right knee gets a bit irritated. My PT guys doesn't seem to concerned and I feel that the stronger I get it will work itself out. At least that's what I'm hoping. My psoas has been feeling a bit tight and we stretched it out at PT on Monday, and hopefully will do that again tonight. It's tricky for me as we don't want to overdue the stretching because of the EDS, but at the same time, it really needs to be done. I am going back to the genetic doctor in January so hopefully will get a better idea of what I should and should not be doing.
As for the left hip, it's not been too bad the last few days. Ironic as I'm getting an injection on Friday. I think it's very happy to be without the crutch and I am definitely more balanced so not putting most of my weight on it. It was pretty sore this am, but I also feel horrid and achy - it's my fibro kicking in. Sleep wasn't good for a few days and though I did fairly well the last two nights, the weather is a bit off where my body is concerned. I will have to make a concerted effort to get some good sleep in before I leave for London next week, as I don't want to start the trip off like this - the flight itself will be a challenge.
I am a bit nervous about the injection. I want it to make the pain go away, but at the same time, if it works, that means I will most likely need surgery. I am in no mental state to be able to handle that again, but at the same time I do want to get it over with so I can get on with my life. Ok, I'm not going to think about that now. As Scarlett says, tomorrow is another day...
Today is my third "official" day going sans crutch. It's been going pretty well. The main issues I've found are if I walk for a few blocks my hamstring starts to get tight and sore on the upper part, and the tendon under my right knee gets a bit irritated. My PT guys doesn't seem to concerned and I feel that the stronger I get it will work itself out. At least that's what I'm hoping. My psoas has been feeling a bit tight and we stretched it out at PT on Monday, and hopefully will do that again tonight. It's tricky for me as we don't want to overdue the stretching because of the EDS, but at the same time, it really needs to be done. I am going back to the genetic doctor in January so hopefully will get a better idea of what I should and should not be doing.
As for the left hip, it's not been too bad the last few days. Ironic as I'm getting an injection on Friday. I think it's very happy to be without the crutch and I am definitely more balanced so not putting most of my weight on it. It was pretty sore this am, but I also feel horrid and achy - it's my fibro kicking in. Sleep wasn't good for a few days and though I did fairly well the last two nights, the weather is a bit off where my body is concerned. I will have to make a concerted effort to get some good sleep in before I leave for London next week, as I don't want to start the trip off like this - the flight itself will be a challenge.
I am a bit nervous about the injection. I want it to make the pain go away, but at the same time, if it works, that means I will most likely need surgery. I am in no mental state to be able to handle that again, but at the same time I do want to get it over with so I can get on with my life. Ok, I'm not going to think about that now. As Scarlett says, tomorrow is another day...
21 November, 2007
9 week post-op
I cannot believe it's been just over nine weeks since surgery, and six weeks since I've been back at work. Where does the time go?
I am learning that slow and steady does seem to be the key for me, though my patience level is barely existent. On Monday I told the PT dude that after last weeks workout with the (only 1 lb!) weight on my left leg, my left hip hurt for days. I said I thought it was the isometric side and back leg lifts and he agreed. This time I did those leg lifts sans weight and it seemed ok, so I'm thinking it was exactly that. My right side we did 1 lb weight for the leg lifts and it seems ok. For the leg lifts with the stim (on the right side) we are still using the bolster and did 3 lbs on the left and 6 lbs on the right. Slow and shaky at first but eventually it got smoother.
The good news is I was told I can start walking short distances sans crutches. He suggested that I can try to go to the corner store, but if I'm running around to bring it with me in case I get tired or sore. The main thing is to not irritate and cause inflammation in the joint. I was hoping to be off the crutches by yesterday, that was my goal, but I supposed this is a compromise I can (or rather will have to) live with. My new goal is to be completely off them by 28th of December, when I leave for London. I really do not want to have to bring this blasted thing with me. I will try to be better about PT as well, as with all the other insanity going on like my nightmare root canal, I became quite lax about it.
Happy Thanksgiving!
I am learning that slow and steady does seem to be the key for me, though my patience level is barely existent. On Monday I told the PT dude that after last weeks workout with the (only 1 lb!) weight on my left leg, my left hip hurt for days. I said I thought it was the isometric side and back leg lifts and he agreed. This time I did those leg lifts sans weight and it seemed ok, so I'm thinking it was exactly that. My right side we did 1 lb weight for the leg lifts and it seems ok. For the leg lifts with the stim (on the right side) we are still using the bolster and did 3 lbs on the left and 6 lbs on the right. Slow and shaky at first but eventually it got smoother.
The good news is I was told I can start walking short distances sans crutches. He suggested that I can try to go to the corner store, but if I'm running around to bring it with me in case I get tired or sore. The main thing is to not irritate and cause inflammation in the joint. I was hoping to be off the crutches by yesterday, that was my goal, but I supposed this is a compromise I can (or rather will have to) live with. My new goal is to be completely off them by 28th of December, when I leave for London. I really do not want to have to bring this blasted thing with me. I will try to be better about PT as well, as with all the other insanity going on like my nightmare root canal, I became quite lax about it.
Happy Thanksgiving!
13 November, 2007
8 Weeks Post op
Sorry, these have become more like weekly updates.
Last Friday I went to see Dr. Kelly for a post op check up. He seemed happy with the way I am progressing, definitely a good thing. He said that I still should not try too much in PT, just focus on strengthening the muscles to help stabilise the joint. He thinks that around 4 or 5 months post op is when I can start pushing it up a notch.
I told him how my left hip has been bothering me a lot more. He still thinks part of it is compensatory, but I did remind him it was bad when I first came to see him about my right hip (just that the right was a hell of a lot worse at the time). He said to tell the PT guys to work on my left and stretch it out, as the IT band is popping a lot and it hurts on the outside of the joint.
Sunday I spent a long time on my feet shopping with my mum. I have not really tried that yet as Dr. Kelly kept saying to keep taking things very slowly. I was sore and achy and my left hip and left wrist (from the crutch) hurt like hell, but my right one held up pretty well. I iced as soon as I returned home and was just a bit stiff that night and yesterday. Not a bad test run at all I'd say. Once I get rid of this last crutch I hope it will be much better for my other body parts.
On the root canal front, I've just returned from the "final" visit with the endodontist. Fingers crossed that once the novocaine wears off I will be okay.
Last Friday I went to see Dr. Kelly for a post op check up. He seemed happy with the way I am progressing, definitely a good thing. He said that I still should not try too much in PT, just focus on strengthening the muscles to help stabilise the joint. He thinks that around 4 or 5 months post op is when I can start pushing it up a notch.
I told him how my left hip has been bothering me a lot more. He still thinks part of it is compensatory, but I did remind him it was bad when I first came to see him about my right hip (just that the right was a hell of a lot worse at the time). He said to tell the PT guys to work on my left and stretch it out, as the IT band is popping a lot and it hurts on the outside of the joint.
Sunday I spent a long time on my feet shopping with my mum. I have not really tried that yet as Dr. Kelly kept saying to keep taking things very slowly. I was sore and achy and my left hip and left wrist (from the crutch) hurt like hell, but my right one held up pretty well. I iced as soon as I returned home and was just a bit stiff that night and yesterday. Not a bad test run at all I'd say. Once I get rid of this last crutch I hope it will be much better for my other body parts.
On the root canal front, I've just returned from the "final" visit with the endodontist. Fingers crossed that once the novocaine wears off I will be okay.
30 October, 2007
PT update
They worked me over pretty good last night. I was doing a 5 lb weight for the leg lifts with the stim - impressive since I wasn't able to do that before surgery. Also, S told me I can try walking everywhere with one crutch and see how that goes. He doesn't think I'm ready for no crutches, but I'll take what I can get. Lets hope I didn't just jinx myself!
23 October, 2007
5 Weeks Post-Op
I apologise for my lack of attention to the blog, but life has been mostly dull as of late. Work is tiring and two days a week after work I have PT, so I don't get home till 8ish. Yesterday I left PT w/o icing - I was so hungry I said I'd do it at home, but had to go eat. An apple beforehand didn't cut it obviously.
The good news is they told me I can start putting more weight on my right leg when walking with both crutches, and I can use one crutch whilst I am home, but must use two when I'm out. The bad news is this means nothing to me because I've been very naughty and have been walking around my flat now for a couple of weeks without any crutches at all. I have no patience. I am able to get around from room to room but rest a lot in between. If my hip starts to hurt I just ice it. (Speaking of which, I think I've become an human icicle - all I do is ice all day long at work). I am not sure that I could go out and walk around all day without the crutches yet, I don't feel strong enough. I asked K last week at PT if he thought I'd be off of my crutches in a month, and he said yes. That is my goal because my first theatre tickets are in a month and there is no way I want to deal with crutches in a tiny seating area - so fingers crossed he's right.
I had been wearing my brace to and from work, especially to protect me on public transport because you would not believe how rude and obnoxious some people can be even when you are on crutches! I found that it helped them from not pushing into or leaning on my hip because if they did they'd get a big metal bit in theirs. Today I decided, mostly because I knew I was going to take a taxi both ways, to try it without the brace. It was ok, but I definitely felt a bit more sore. I'll have to see what I will do when taking the bus again.
As for my PT last night - they kicked it up a notch or two. I started doing leg lifts that I haven't done since before my surgery. I am definitely sore from them, but in an achy type of way, which is okay as it shows I am finally working some muscles. Better achy and sore than the old stabbing pain.
I did contact Dr. Kelly's office to see if I was to renew the anti-inflammatory meds. These are very bad for me because of my GERD, so was hoping to be able to stop. Unfortunately they want me to stay on them at least until my next appointment. I also mentioned the my left hip is snapping like crazy (IT band most likely) when I walk and they said they'd discuss that at the next visit. I seriously do not think I can go through this again, so I am praying that my left hip steps up and behaves itself and stops wanting the attention!
My biggest issue is still not being able to sleep. It's definitely been worse sine the surgery, and it's either the discomfort (the rest of me is in agony from the crutches and compensation) or the fear that I will sleep in a position that will be bad for my hip. Trust me, I wake up in pretzel positions on a regular basis so and I've already woken up at least once with my right hip in a very bad position. I've been needing to take my "magic" pills on a more regular basis, which is not good because even if I take them early evening, I am wiped out the next day. I am hoping this will all work itself out as I improve.
The one thing I am looking forward to this week is my appointment with my chiropractor. He has these wonderful masseuses that do Active Release Therapy and my back and neck are in desperate need of this. Thursday can't come fast enough!
The good news is they told me I can start putting more weight on my right leg when walking with both crutches, and I can use one crutch whilst I am home, but must use two when I'm out. The bad news is this means nothing to me because I've been very naughty and have been walking around my flat now for a couple of weeks without any crutches at all. I have no patience. I am able to get around from room to room but rest a lot in between. If my hip starts to hurt I just ice it. (Speaking of which, I think I've become an human icicle - all I do is ice all day long at work). I am not sure that I could go out and walk around all day without the crutches yet, I don't feel strong enough. I asked K last week at PT if he thought I'd be off of my crutches in a month, and he said yes. That is my goal because my first theatre tickets are in a month and there is no way I want to deal with crutches in a tiny seating area - so fingers crossed he's right.
I had been wearing my brace to and from work, especially to protect me on public transport because you would not believe how rude and obnoxious some people can be even when you are on crutches! I found that it helped them from not pushing into or leaning on my hip because if they did they'd get a big metal bit in theirs. Today I decided, mostly because I knew I was going to take a taxi both ways, to try it without the brace. It was ok, but I definitely felt a bit more sore. I'll have to see what I will do when taking the bus again.
As for my PT last night - they kicked it up a notch or two. I started doing leg lifts that I haven't done since before my surgery. I am definitely sore from them, but in an achy type of way, which is okay as it shows I am finally working some muscles. Better achy and sore than the old stabbing pain.
I did contact Dr. Kelly's office to see if I was to renew the anti-inflammatory meds. These are very bad for me because of my GERD, so was hoping to be able to stop. Unfortunately they want me to stay on them at least until my next appointment. I also mentioned the my left hip is snapping like crazy (IT band most likely) when I walk and they said they'd discuss that at the next visit. I seriously do not think I can go through this again, so I am praying that my left hip steps up and behaves itself and stops wanting the attention!
My biggest issue is still not being able to sleep. It's definitely been worse sine the surgery, and it's either the discomfort (the rest of me is in agony from the crutches and compensation) or the fear that I will sleep in a position that will be bad for my hip. Trust me, I wake up in pretzel positions on a regular basis so and I've already woken up at least once with my right hip in a very bad position. I've been needing to take my "magic" pills on a more regular basis, which is not good because even if I take them early evening, I am wiped out the next day. I am hoping this will all work itself out as I improve.
The one thing I am looking forward to this week is my appointment with my chiropractor. He has these wonderful masseuses that do Active Release Therapy and my back and neck are in desperate need of this. Thursday can't come fast enough!
11 October, 2007
Again with the lack of sleep
Yesterday I had another PT appointment. I was pretty knackered before I even got there. I sit mostly at work but was told to move around every 45 minutes, which I am sure has stretched out to longer. I just don't have the energy as the crutches are wiping me out and killing my hands. When I left for PT, the timing was bad as all the cabs were "off duty". I was ready to cry until finally a nice cabbie that was off duty stopped to ask where I was going and he was kind enough to give me a lift. The walk to PT from my office is about two long blocks and four short blocks, but there is NO WAY I could have made that on crutches. I am so tired from the crutches, I think you really expend a lot more energy with them than just walking normally.
Pain and torture was excruciating yesterday. I did the bike for 15 minutes, and then some internal rotation and kneeling on the table. When K, one of my PT's, came over, I told him that my psoas has been REALLY tight and driving me nuts. His response was that we have to keep it tight per the Dr. I said yes I know that but the Dr also said that he wants it to move smoothly, not just get stuck with extremely limited ROM. I understand it's a fine line, but I can't have this feeling forever because it will drive me nuts, but I also don't want the laxity to get to where it was before the surgery. I'm losing my mind. So K massaged the psoas and then all of the scars, and started stretching me A LOT more than has been done. It was uncomfortable but bearable, until all of a sudden I had a shooting pain down the outside of my hip. I don't know what triggered it but it lasted about 5-10 minutes as was horrible. After that and some manual resistance exercises with K I did the electrical stim for about 10 minutes and then iced. I am spending about 2 hours from start to finish there.
After I finally changed and got all of my things together, I went down to go home. I didn't even entertain the thought of a cab as it was rush hour so was beyond pleasantly surprised when I reached the corner and saw an available one. He was so nice he even got out to open the door for me. It was such a relief to not have to take the bus home. I was a zombie by the time I got back to my flat so ordered some (not very healthy) dinner but I didn't care. I spent the evening on the couch and then decided to take a muscle relaxer for my psoas. I must have been in more pain all over than I thought because that didn't even knock me out. My fibro is flaring up something awful with this crappy weather and my whole body is aching, which is why I didn't sleep. When the alarm went off this morning and could barely move. I can't say "when I woke up" because I had been up for ages. It took me an hour or so to just get up to get to the loo. Thankfully my friend T is staying with me this week and was able to help get me sorted and then we took a cab down to work.
So I am sitting here taking a break and have ice on both my hips, but wish I had more ice packs for my hands and shoulders. I wish I could have just stayed in bed today but will go home straight after to rest and will try my "magic pill" tonight so hopefully some sleep will be in order.
Next week I start PT twice a week, G-d give me strength!
Pain and torture was excruciating yesterday. I did the bike for 15 minutes, and then some internal rotation and kneeling on the table. When K, one of my PT's, came over, I told him that my psoas has been REALLY tight and driving me nuts. His response was that we have to keep it tight per the Dr. I said yes I know that but the Dr also said that he wants it to move smoothly, not just get stuck with extremely limited ROM. I understand it's a fine line, but I can't have this feeling forever because it will drive me nuts, but I also don't want the laxity to get to where it was before the surgery. I'm losing my mind. So K massaged the psoas and then all of the scars, and started stretching me A LOT more than has been done. It was uncomfortable but bearable, until all of a sudden I had a shooting pain down the outside of my hip. I don't know what triggered it but it lasted about 5-10 minutes as was horrible. After that and some manual resistance exercises with K I did the electrical stim for about 10 minutes and then iced. I am spending about 2 hours from start to finish there.
After I finally changed and got all of my things together, I went down to go home. I didn't even entertain the thought of a cab as it was rush hour so was beyond pleasantly surprised when I reached the corner and saw an available one. He was so nice he even got out to open the door for me. It was such a relief to not have to take the bus home. I was a zombie by the time I got back to my flat so ordered some (not very healthy) dinner but I didn't care. I spent the evening on the couch and then decided to take a muscle relaxer for my psoas. I must have been in more pain all over than I thought because that didn't even knock me out. My fibro is flaring up something awful with this crappy weather and my whole body is aching, which is why I didn't sleep. When the alarm went off this morning and could barely move. I can't say "when I woke up" because I had been up for ages. It took me an hour or so to just get up to get to the loo. Thankfully my friend T is staying with me this week and was able to help get me sorted and then we took a cab down to work.
So I am sitting here taking a break and have ice on both my hips, but wish I had more ice packs for my hands and shoulders. I wish I could have just stayed in bed today but will go home straight after to rest and will try my "magic pill" tonight so hopefully some sleep will be in order.
Next week I start PT twice a week, G-d give me strength!
07 October, 2007
One step forward, two steps back
At least that is what it feels like at times. I have slept the last two nights but only because I've taken my "magic" pills. I am trying to get as much sleep as possible to get ready for next week.
My mother and I did a 'test run' to the office on Friday. I was originally going to do it during rush hour, but since I hadn't slept that night and was so sick from the pain killers, it was delayed for a few hours. We ended up leaving about 12.10 pm from the flat. I had to walk one block to the crosstown bus, take that to 6 long blocks to the Park, and then switch to a downtown bus. There was a lot of traffic from road works. We finally reached my stop, got off and walked a block and a half to the office. The whole trip took over an hour. I was pretty wiped out when we got to the office, but at least I made it. I waited there for a bit to see one of my coworkers who was out to lunch, and also thought to ring Dr. Kelly's office to see if they had the surgical report yet. After a couple of calls they finally faxed it to me. I will see if I can post it as the PDF or will have to retype it all. I was also extremely relieved to find out that my bosses will be out on Monday and that M arranged for me to work from home. It felt like a stay of execution - not that work is horrid, just getting there at present is quite a workout.
After we left the office we stopped to get something to eat, I had just a little as I was still queasy from the pain meds, and then we took the bus up Madison. It was not even rush hour but the bus, when it finally did show up, was absolutely packed. No matter when I take this bus line it seems to always be delayed and always be packed like a sardine can. I had to ask a not very happy looking girl to get up so I could sit down. Unfortunately my mother had to stand and I felt so bad, she was getting jostled all about. Some woman decided to step on my right foot with all of her weight for a minute or so, she seriously wouldn't move, put all of her weight on it, till I finally let out with an expletive! My toe throbbed for over an hour. It's like constantly getting beat up, no matter how hard you try.
Yesterday was a bit of a late start, but we didn't have any place to go so it was ok. I had some pictures from my Gran's flat that we needed to hang so we did that. A friend was meant to come by but never heard from her so we went across the street to Starbucks and sat outside for a couple of hours, then I tried to walk around a little bit. I am still wearing my brace as I feel much more secure with it and the doctor told me that I should wear it as long as I feel so. We ended up going to a German restaurant near me, and even though it was early the place was very crowded as it is Oktoberfest. It was pretty good but very expensive. And it also delayed my return to my flat. I normally love my flat but am so tired of it.
Think I will go eat some breaky and do my PT. I have to go shopping later to get lunch supplies for the week also. My mother is going home today and I am stressed about that. She has been a life saver these last few weeks. I wish I had some dosh so I could send her on a well deserved and earned holiday, this year has been rough for her, not even including my surgery. I should start playing the lottery! My friend T is meant to stay with me tonight and for at least part of the week, so I won't be completely alone which is good. I am getting around better in the house but I still feel better if someone is around for the time being. It's all so stressful.
On one other note, this has been a very difficult recovery, not just the hip itself, but all of my other body issues (hands, shoulders, etc). I would like to thank those people who spent time with me. Even a brief visit was such a welcome break from the monotony of this slow recovery - so just wanted to say thank you.
My mother and I did a 'test run' to the office on Friday. I was originally going to do it during rush hour, but since I hadn't slept that night and was so sick from the pain killers, it was delayed for a few hours. We ended up leaving about 12.10 pm from the flat. I had to walk one block to the crosstown bus, take that to 6 long blocks to the Park, and then switch to a downtown bus. There was a lot of traffic from road works. We finally reached my stop, got off and walked a block and a half to the office. The whole trip took over an hour. I was pretty wiped out when we got to the office, but at least I made it. I waited there for a bit to see one of my coworkers who was out to lunch, and also thought to ring Dr. Kelly's office to see if they had the surgical report yet. After a couple of calls they finally faxed it to me. I will see if I can post it as the PDF or will have to retype it all. I was also extremely relieved to find out that my bosses will be out on Monday and that M arranged for me to work from home. It felt like a stay of execution - not that work is horrid, just getting there at present is quite a workout.
After we left the office we stopped to get something to eat, I had just a little as I was still queasy from the pain meds, and then we took the bus up Madison. It was not even rush hour but the bus, when it finally did show up, was absolutely packed. No matter when I take this bus line it seems to always be delayed and always be packed like a sardine can. I had to ask a not very happy looking girl to get up so I could sit down. Unfortunately my mother had to stand and I felt so bad, she was getting jostled all about. Some woman decided to step on my right foot with all of her weight for a minute or so, she seriously wouldn't move, put all of her weight on it, till I finally let out with an expletive! My toe throbbed for over an hour. It's like constantly getting beat up, no matter how hard you try.
Yesterday was a bit of a late start, but we didn't have any place to go so it was ok. I had some pictures from my Gran's flat that we needed to hang so we did that. A friend was meant to come by but never heard from her so we went across the street to Starbucks and sat outside for a couple of hours, then I tried to walk around a little bit. I am still wearing my brace as I feel much more secure with it and the doctor told me that I should wear it as long as I feel so. We ended up going to a German restaurant near me, and even though it was early the place was very crowded as it is Oktoberfest. It was pretty good but very expensive. And it also delayed my return to my flat. I normally love my flat but am so tired of it.
Think I will go eat some breaky and do my PT. I have to go shopping later to get lunch supplies for the week also. My mother is going home today and I am stressed about that. She has been a life saver these last few weeks. I wish I had some dosh so I could send her on a well deserved and earned holiday, this year has been rough for her, not even including my surgery. I should start playing the lottery! My friend T is meant to stay with me tonight and for at least part of the week, so I won't be completely alone which is good. I am getting around better in the house but I still feel better if someone is around for the time being. It's all so stressful.
On one other note, this has been a very difficult recovery, not just the hip itself, but all of my other body issues (hands, shoulders, etc). I would like to thank those people who spent time with me. Even a brief visit was such a welcome break from the monotony of this slow recovery - so just wanted to say thank you.
05 October, 2007
Learning the limits
Yesterday was my third PT appointment. We didn't seem to do as much as the last two, which was okay with me since various parts of my body, sans the right hip, were killing me. One of the PT guys showed me how to wrap my wrists for extra support because my hands are killing me with the crutches. I know it seems all I do is whinge, but this process is getting the better of me. Dr. Kelly was meant to talk to the PT guys about how he wants me to proceed, but it seemed no one had spoken to him so I had to ask them to contact him so we're all on the same page. One of the PT guys did not seem to think it was such a good idea to return to work on Monday, but I really don't have a choice. Mostly I am going mad just sitting here. He is afraid I will do too much and flare up with the various multitudes of bodily issues I have. I guess we'll have to just see how it goes and I will just have to do what I can.
I had it in my head since earlier this week that after PT I would take my mother out for a well deserved lunch at a favourite little bistro that was not too far from the PT office. Unfortunately once I get something into my head that's it. And that was where it all went wrong.
After PT we went to my bank on the corner and then walked a few blocks to the restaurant. Looking back we really should have taken a taxi, but I am so frustrated from not going anywhere that I decided I was going to do it all by myself. I admit it, I am an idiot.
Thankfully there was a table free when we got there, and we had a lovely lunch with a little wine. My right hip started hurting then. After lunch we were going to try to take the bus back but I was too tired and we were very lucky that a cab was free, as most were off duty at that time.
I was so knackered from this trip that I ended up passing out for a while when we got home. I did the Game Ready for my right hip and that helped for a little bit but my psoas was really hurting as well as my right knee and left hip. This kept me up for a while and I ended up taking a pain killer so I could hopefully get some sleep. I eventually did fall asleep for a little bit, but have now been up since around 5 am. I took another pain killer around 6 am and am very loopy and queasy from it. I haven't been this out of it from them for a while, I guess I had started to get used to them but now that I've been not taking them regularly I am more affected.
I was hoping to do a test run to the office during rush hour this morning with my mother, but I am definitely not up for it now. Hopefully later on we will be able to do it.
I had it in my head since earlier this week that after PT I would take my mother out for a well deserved lunch at a favourite little bistro that was not too far from the PT office. Unfortunately once I get something into my head that's it. And that was where it all went wrong.
After PT we went to my bank on the corner and then walked a few blocks to the restaurant. Looking back we really should have taken a taxi, but I am so frustrated from not going anywhere that I decided I was going to do it all by myself. I admit it, I am an idiot.
Thankfully there was a table free when we got there, and we had a lovely lunch with a little wine. My right hip started hurting then. After lunch we were going to try to take the bus back but I was too tired and we were very lucky that a cab was free, as most were off duty at that time.
I was so knackered from this trip that I ended up passing out for a while when we got home. I did the Game Ready for my right hip and that helped for a little bit but my psoas was really hurting as well as my right knee and left hip. This kept me up for a while and I ended up taking a pain killer so I could hopefully get some sleep. I eventually did fall asleep for a little bit, but have now been up since around 5 am. I took another pain killer around 6 am and am very loopy and queasy from it. I haven't been this out of it from them for a while, I guess I had started to get used to them but now that I've been not taking them regularly I am more affected.
I was hoping to do a test run to the office during rush hour this morning with my mother, but I am definitely not up for it now. Hopefully later on we will be able to do it.
24 September, 2007
Yay I finally got some sleep
Well it wasn't a complete night but at least 6 good hours so I'm quite happy about that. I was so desperate for it and it was desperately needed as well. Once more I didn't have to take a pain pill when I woke up, waited until about 10 am today! My parents think my walking with the crutches has gotten better too. Improvement all around methinks!
Today was a very busy day. I had a dentist appointment this morning. Yes you would think I had enough pain inflicted last week, but it was a long overdue visit. Thankfully I didn't have any cavities, and the cleaning wasn't too bad as the lovely lady numbed my mouth up first. I do have to go back next week to have some bonding done on 3 teeth as I have a few very sensitive spots and this seems to help them out, but thankfully it's not painful.
After the dentist I went for my eye exam. I hadn't had one in almost two years so thought it best that I got that out of the way whilst I am on the island as well. My eyes haven't gotten worse, and I got to get new glasses as well. All very exciting, considering my level of excitement has been nil. Don't get me wrong, I love spending time with my parents, but at least in the city I had some visitors. I'm going a bit mad being trapped out here in the boonies! Thankfully we will be returning to the city tomorrow and not back here till Saturday. I am completely wiped from the appointments though. The crutches, though much better than typical ones, still irritate my shoulders and hands, and it's quite tiring dragging yourself around with them as well.
I have another PT appointment on Wednesday afternoon and a post-op appointment with Dr. Kelly on Friday morning. I hope my stitches will be coming out and that he will tell me I can stop using the bloody CPM machine. It's not that I mind using it that much, it's just going to be another $350 for another 14 days, and am not looking forward to the additional cost. Bloody unbelievable the cost of these things!
Today was a very busy day. I had a dentist appointment this morning. Yes you would think I had enough pain inflicted last week, but it was a long overdue visit. Thankfully I didn't have any cavities, and the cleaning wasn't too bad as the lovely lady numbed my mouth up first. I do have to go back next week to have some bonding done on 3 teeth as I have a few very sensitive spots and this seems to help them out, but thankfully it's not painful.
After the dentist I went for my eye exam. I hadn't had one in almost two years so thought it best that I got that out of the way whilst I am on the island as well. My eyes haven't gotten worse, and I got to get new glasses as well. All very exciting, considering my level of excitement has been nil. Don't get me wrong, I love spending time with my parents, but at least in the city I had some visitors. I'm going a bit mad being trapped out here in the boonies! Thankfully we will be returning to the city tomorrow and not back here till Saturday. I am completely wiped from the appointments though. The crutches, though much better than typical ones, still irritate my shoulders and hands, and it's quite tiring dragging yourself around with them as well.
I have another PT appointment on Wednesday afternoon and a post-op appointment with Dr. Kelly on Friday morning. I hope my stitches will be coming out and that he will tell me I can stop using the bloody CPM machine. It's not that I mind using it that much, it's just going to be another $350 for another 14 days, and am not looking forward to the additional cost. Bloody unbelievable the cost of these things!
21 September, 2007
rough night
I'm not sure if my bad night was from too much walking/standing on Wednesday, the car ride on Thursday or a combination of both. Whichever it all equaled a rough night. I was exhausted and went to bed about 9.30 pm. I woke up in major pain around 11.40 pm. I couldn't believe it was only two hours since I'd gone to bed. I woke up again around 1 am and then around 5 am, then 7 am. I was in a lot of pain and discomfort as well as my back aching and my shoulders and wrists hurting from the crutches. I took a shower when I first got up to try to deal with the aching muscles all over, then used the GameReady for an hour or so to freeze my hip a bit. I just took a nap for about an hour and an half as I couldn't keep my eyes open. I am so glad that I do not have to go to work as there is no way I could handle it right now.
Currently I am waiting for my mum to return so I can do the CPM and my PT exercises. She's been an awfully long time, I am beginning to think she's run off! Can't say I'd blame her at this point, she was up with me all night!
Currently I am waiting for my mum to return so I can do the CPM and my PT exercises. She's been an awfully long time, I am beginning to think she's run off! Can't say I'd blame her at this point, she was up with me all night!
20 September, 2007
update
Arianna, Dr. Kelly's PA rang me on Tuesday evening and we reviewed a bit of what was done in surgery. I wrote down as much as I could. I will add the post-op report when I receive it, hopefully at my appointment with him next week.
Arianna stated the following:
Impingement was bad. Acetabulum had too much bone and was shaved down. The femur was also shaved down.
Labral tear was not as big as thought and the frayed portion was debrided. The rest of the labrum was intact so no sutures were needed.
There was a lot of inflammation and very red inside the joint, he debrided what he could.
Psoas release - area was very red, 10% was cut. Because of this I will be a bit weaker for the first 3 months but should eventually get back to "normal" strength.
I was also told that I should be on crutches 2-3 weeks depending on how my strength is and if I am able to walk without limping. But as with everything else, it's a 'wait and see' thing.
I also checked with my genetic doctors office and was told that my biopsied tissue is growing and when they have enough it will be sent to the research lab in Seattle. Still no word on my Echo, but they were following up and hopefully will have that by tomorrow.
So that's the medical bit of the update.
Yesterday I went to PT for the first time. I have to say it definitely helps that I know the guys I am working with there as it made me much more comfortable. We did some small movements with the green band which wasn't too bad. I was not able to do bridges, too painful for me. I went on the bike for a bit but at first could not to a full rotation as it was too painful, so after doing a semi back and forth for a few minutes was finally able to do a full rotation for about 5 more minutes, which was a huge accomplishment. As my little nephew says "I did it!". All in all they thought I did pretty well.
After PT was when the nightmare started though. We left the office, which is on 56th, about 5 pm. We were not able to get a cab on that street, it was the worst time as most were off duty, and the others all taken. I was told not to walk more than a block for a week or so, but my mum and I thought perhaps we could find a cab on 3rd Avenue. After crossing the avenue and waiting for a while, we realised this was not going to happen either. We walked up to 57th, and thought the other side looked more promising. This was not to be either. Eventually we crossed back to the other side of 57th and were going to ring my dad to come down with the car, but there was a bus that had arrived which goes up York near my apartment. I did not have my metrocard which is why we hadn't tried this sooner. I was desperate so sent my mum over to ask the man if he would kindly let me on sans metrocard. Bless his heart as he took pity on poor gimpy me and let us on. I thought I was going to pass out at this point. After 2 hours of PT and then standing for at least an half hour on the pavement was just too much. I still had to walk from York to First Avenue when we got off the bus, and that was very slow going. Every part of my body was killing me at this point. Thankfully we finally made it to my flat and I put the GameReady on immediately, took another pain pill and put on my ipod to try to rest.
Today I wanted to take it easy, but we had to come out to the island, so there was a lot of packing to do. Unfortunately this fell mostly to my poor exhausted mother, who needs an holiday after this for sure! Thankfully the drive was only an hour as I was so nauseous from the pain meds. As soon as we got home I went straight to bed for a bit, and when I woke up was in a lot of pain. I used the GameReady for about an hour and took (reluctantly) another pain pill. I am now wonky again. The less I move when I'm on the drugs the better as even walking makes me queasy. I know this doesn't sound promising but I am foregoing my PT exercises today as I just couldn't do it for all the money in the world. I promise tomorrow I will do it!
Arianna stated the following:
Impingement was bad. Acetabulum had too much bone and was shaved down. The femur was also shaved down.
Labral tear was not as big as thought and the frayed portion was debrided. The rest of the labrum was intact so no sutures were needed.
There was a lot of inflammation and very red inside the joint, he debrided what he could.
Psoas release - area was very red, 10% was cut. Because of this I will be a bit weaker for the first 3 months but should eventually get back to "normal" strength.
I was also told that I should be on crutches 2-3 weeks depending on how my strength is and if I am able to walk without limping. But as with everything else, it's a 'wait and see' thing.
I also checked with my genetic doctors office and was told that my biopsied tissue is growing and when they have enough it will be sent to the research lab in Seattle. Still no word on my Echo, but they were following up and hopefully will have that by tomorrow.
So that's the medical bit of the update.
Yesterday I went to PT for the first time. I have to say it definitely helps that I know the guys I am working with there as it made me much more comfortable. We did some small movements with the green band which wasn't too bad. I was not able to do bridges, too painful for me. I went on the bike for a bit but at first could not to a full rotation as it was too painful, so after doing a semi back and forth for a few minutes was finally able to do a full rotation for about 5 more minutes, which was a huge accomplishment. As my little nephew says "I did it!". All in all they thought I did pretty well.
After PT was when the nightmare started though. We left the office, which is on 56th, about 5 pm. We were not able to get a cab on that street, it was the worst time as most were off duty, and the others all taken. I was told not to walk more than a block for a week or so, but my mum and I thought perhaps we could find a cab on 3rd Avenue. After crossing the avenue and waiting for a while, we realised this was not going to happen either. We walked up to 57th, and thought the other side looked more promising. This was not to be either. Eventually we crossed back to the other side of 57th and were going to ring my dad to come down with the car, but there was a bus that had arrived which goes up York near my apartment. I did not have my metrocard which is why we hadn't tried this sooner. I was desperate so sent my mum over to ask the man if he would kindly let me on sans metrocard. Bless his heart as he took pity on poor gimpy me and let us on. I thought I was going to pass out at this point. After 2 hours of PT and then standing for at least an half hour on the pavement was just too much. I still had to walk from York to First Avenue when we got off the bus, and that was very slow going. Every part of my body was killing me at this point. Thankfully we finally made it to my flat and I put the GameReady on immediately, took another pain pill and put on my ipod to try to rest.
Today I wanted to take it easy, but we had to come out to the island, so there was a lot of packing to do. Unfortunately this fell mostly to my poor exhausted mother, who needs an holiday after this for sure! Thankfully the drive was only an hour as I was so nauseous from the pain meds. As soon as we got home I went straight to bed for a bit, and when I woke up was in a lot of pain. I used the GameReady for about an hour and took (reluctantly) another pain pill. I am now wonky again. The less I move when I'm on the drugs the better as even walking makes me queasy. I know this doesn't sound promising but I am foregoing my PT exercises today as I just couldn't do it for all the money in the world. I promise tomorrow I will do it!
05 September, 2007
Yet another doctors visit
Tomorrow is my appointment with the genetic doctor. I don't know if I'm more afraid of getting a diagnosis or having another doctor tell me that they can't suss out what is wrong with me. I'm thinking it's the latter of the two. Then again, if I get a diagnosis that does not mean that they will have a "fix" for what is wrong with me. It's all very much twisting my brain into a pretzel.
I admit at this point in my life I am completely and utterly sick of doctors. After my experiences with some of them you begin to wonder if they actually know what they are doing. Yes, I've been lucky with a few, my hand surgeon for example was brilliant. However it did take me three years and seven doctors to find him. In the course of that adventure, one *supposed* top hand surgeon saw me a year or so into the hunt and said that there was nothing wrong with me and the next time my hand hurt to call him to complain and not my mother. You have to love that bedside manner! I was young at the time and completely devastated by that. The git had me thinking that it was all in my head and to be honest, after all the wacky things I've had wrong, you do start to wonder if it is all "in your head".
So that leaves tomorrow, and the fear of another doctor saying "we don't know what's wrong with you" and then the self doubt of thinking that perhaps it really is "just in my head". Yes I know not all of it is, but if you had the list in front of you that I've just written up for the doctor of all of my pains and symptoms and issues, it's hard to believe it's just one person with all of these complaints.
On an aside, I've been flipping out about the crutches situation. When I tried the forearm crutches at PT last week, they did not feel that great. Since then I have been debating whether to get the millennium crutches that I have read about on the different boards. I finally decided to just go ahead and order them because I've heard such good things and at this point, I have to make a decision one way or another. Hopefully it's the right one for my hands as well as my hips.
I admit at this point in my life I am completely and utterly sick of doctors. After my experiences with some of them you begin to wonder if they actually know what they are doing. Yes, I've been lucky with a few, my hand surgeon for example was brilliant. However it did take me three years and seven doctors to find him. In the course of that adventure, one *supposed* top hand surgeon saw me a year or so into the hunt and said that there was nothing wrong with me and the next time my hand hurt to call him to complain and not my mother. You have to love that bedside manner! I was young at the time and completely devastated by that. The git had me thinking that it was all in my head and to be honest, after all the wacky things I've had wrong, you do start to wonder if it is all "in your head".
So that leaves tomorrow, and the fear of another doctor saying "we don't know what's wrong with you" and then the self doubt of thinking that perhaps it really is "just in my head". Yes I know not all of it is, but if you had the list in front of you that I've just written up for the doctor of all of my pains and symptoms and issues, it's hard to believe it's just one person with all of these complaints.
On an aside, I've been flipping out about the crutches situation. When I tried the forearm crutches at PT last week, they did not feel that great. Since then I have been debating whether to get the millennium crutches that I have read about on the different boards. I finally decided to just go ahead and order them because I've heard such good things and at this point, I have to make a decision one way or another. Hopefully it's the right one for my hands as well as my hips.
01 August, 2007
PT appt
Just to update as of today -
I had a PT appt. My insurance is only approving two more appts at the moment, so we've split them up as Dr. Kelly wants me to be evaluated closer to surgery. Now it's up to me to do more "homework" as I call it. I have been doing some excercises in the pool and will keep that up as much as possible. Also, my PT gave me more shoulder excercise to do so I can strengthen it up for the crutches. He is recommending some type of "elbow crutch" but I will have to do some research. The key is to keep as much pressure off of my hands and shoulders as possible, since I'm such a complete wreck!
He explained more about the psoas muscle release and said it should be fine, but with all that Dr. Kelly will be doing on my hip, I will probably be on crutches 4-5 wks. G-d give me strength, that is going to be rough!
So, onwards and upwards as they keep telling me. I have much to accomplish before I even have the surgery, but I'm hoping all this work will pay off with a (touch wood) quicker recovery!
I had a PT appt. My insurance is only approving two more appts at the moment, so we've split them up as Dr. Kelly wants me to be evaluated closer to surgery. Now it's up to me to do more "homework" as I call it. I have been doing some excercises in the pool and will keep that up as much as possible. Also, my PT gave me more shoulder excercise to do so I can strengthen it up for the crutches. He is recommending some type of "elbow crutch" but I will have to do some research. The key is to keep as much pressure off of my hands and shoulders as possible, since I'm such a complete wreck!
He explained more about the psoas muscle release and said it should be fine, but with all that Dr. Kelly will be doing on my hip, I will probably be on crutches 4-5 wks. G-d give me strength, that is going to be rough!
So, onwards and upwards as they keep telling me. I have much to accomplish before I even have the surgery, but I'm hoping all this work will pay off with a (touch wood) quicker recovery!
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